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LifeCourse
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Charting the LifeCourse Framework

Supporting positive life trajectories

Legislature
2024 Kansas State Legislature

Both the House and Senate ​will come to order at 2 PM on Monday, January 08, 2024. Disability advocates are urged to get involved!

Opens January 08, 2024

Leadership
Leadership Development Opportunities

KCDD encourages​ ​disability ​advocates to develop their leadership skills through the Kansas Center for Leadership. Scholarships are available​.​
​If interested in participating, contact us.

Abuse
Stop the Abuse, Neglect and Exploitation

If you suspect a child, a person with a disability or anyone is being abused, neglected or exploited, call the Kansas Protection Report Center at 1.800.922.5330, or, from outside Kansas, call 1.785.296.0044.

If someone is in immediate danger or needs medical assistance, call 911!

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Welcome to the Kansas Council on Developmental Disabilities (KCDD)

Action Alerts

KCDD’s action alerts keeps self-advocates, parents, guardians and allies informed on state and national legislative and budgetary issues. Sign up to subscribe.

Stay informed 

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Health Equity and Outcomes Coalition

Through a series of workgroups, this coalition is developing an action-oriented blueprint aimed at ensuring our healthcare systems and partners in Kansas realize health equity for our I/DD population across Kansas.

About the program 

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Charting a LifeCourse

The Charting the LifeCourse Framework helps people and families of all abilities and all ages develop a vision for a good life, think about what they need to know and...

About the framework 

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Abuse, Neglect, and Exploitation

KCDD is focusing on the prevention of abuse and assuring quality care for people with disabilities in healthcare, schools, group homes and day care settings.

About quality care 

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Helpful Acronyms used in the Intellectual Developmental Disability (I/DD) Service System

ADRC: Aging and Disability Resource Center.

AFP: Alternative Funding Plan. A plan outlining an individual’s I/DD services & costs for those services. Available funding: SGF (funding not currently available), discretionary, or private pay.

ANE: Abuse, Neglect, and Exploitation.

APS: Adult Protective Services. Effective 7/1/12 is now a division of Kansas Department of Children and Families (DCF).

BASIS: Basic Assessment and Services Information System. It is the statewide reporting system for I/DD-­‐eligible individuals waiting for and/or receiving services/supports and statewide functional assessment that determines eligibility for the HCBS/IDD program services. This assessment is also known as the Developmental Disabilities Profile (DDP). The statewide reporting system is now called KAMIS.

BLDC: Big Lakes Developmental Center, Inc. The state designated CDDO for Riley, Geary, Clay, and Pottawatomie counties. BLDC is also a CSP.

BMP: Behavior Management Plan.

BSP: Behavior Support Plan

CC: Care Coordinator

CCM: Council of Community Members. Responsible for development & implementation of dispute resolution procedures & oversees services offered within the area.

CDDO: Community Developmental Disability Organization. 27 CDDOs in Kansas. Single point of application, determination, & referral for I/DD services.

CDDO service area: HTTP://www.kcdcinfo.ks.gov/resources/service-­‐maps and scroll down to Community Developmental Disability Organizations (CDDOs) and click on that link.

CFI: Call For Investment.

CIC: Child in Custody. A child who has been taken into state custody by Kansas Department of Aging and Disability Services (KDADS)

CINC: Child In Need of Care. A child who has been taken into state custody by KDADS.

CM: Case Manager

CMS: Center for Medicare and Medicaid Services.

CPS: Child Protective Services. Effective 7/1/12 is now a division of Kansas Department for Children and Family Services (CFS).

CSP: Community Service Provider. Provides services in the community to individuals with I/DD.

CSP: Community Services & Programs. Previously referred to as CSS. A division in KDADS with Home and Community Based Services and Behavioral Health Programs.

CSS: Community Supports & Services. Previously a division of SRS; now a division of KDADS effective 7/1/12. Renamed Community Services & Programs (CSP).

DBHS: Disability & Behavioral Health Services. A division of KDADS. Formerly known as Health Care Policy (HCP).

DCF: Department for Children and Families (formerly SRS).

DD: Developmental Disability. A range of conditions other than intellectual disability which qualify for I/DD funded supports.

DDRA: Developmental Disability Reform Act. K.S.A. 39-­‐1801-­‐K.S.A. 39-­‐1811 and K.A.R. Article 63 and 64.

DDP: Developmental Disability Profile. The assessment portion of BASIS.

DRC: Disability Rights Center. www.drckansas.org

DFS: Direct Financial Support. Quarterly cash support available through the CDDO to assist with costs associated with caring for an I/DD individual. Subject to available state funding. Currently no funding for this support.

DDP: Developmental Disabilities Profile. Assessment instrument designed to provide information concerning an individual’s functional disabilities.

DSM V: Diagnostic and Statistical Manual of Mental Disorders, 5th Edition (Text Revision). A diagnostic reference manual used by mental health professionals in the United States.

EDI: Eligibility Determination Instrument.  A tool used during eligibility process to determine areas of functional limitations.

ELP: Essential Lifestyle Plan. A type of the person-centered plan, required for anyone that receives IDD services.

FMS: Financial Management Services. An agency that oversees the administration of Personal Assistant Services.

F&F: Friends and Family Advisory Council; the council is comprised of self-­‐advocates, friends and family members representing I/DD individuals utilizing KanCare, from across Kansas as a grassroots advisory voice to the Secretary of KDADS.

FY: Fiscal year. July 1 through June 30 of a given year. Will usually have the year listed. For example: FY04.

FYE: Fiscal Year Ending. Occurs at the end of June. Will usually have the year listed. For example: FYE04 would mean Fiscal Year Ending June 2004.

HCBS: Home and Community-­‐Based Services. Waiver for I/DD services. This is a Medicaid-­‐based funding stream.

HH: Health Home; designed to facilitate and coordinate physical, behavioral and long-­‐term community-based services and supports.

HH---CC: Health Home chronic conditions; e.g. asthma and diabetes.

HH---SMI: Health Home serious mental illness.

HH: Home Health; Physician ordered, individualized medical/ personal care in a person’s own home. Time-­‐limited.

HH: Host Home. A form of residential service in which an adult lives in a non-­‐relative family home. Sometimes called: shared living, adult foster care, extended family teaching.

HIPAA: means the federal Health Insurance Portability and Accountability Act.

ICF/DD: Facility providing continuous active treatment for I/DD individuals. Is less restrictive than an SMRH. Now called ICF/IDD.

I/DD: Intellectual and Developmental Disabilities, the preferred term.

IEP: Individual Education Plan. A plan of goals and action steps developed for achieving special education goals. Used by public education systems.

IQ: Intelligence quotient. The score derived after administering a standardized intelligence test. An IQ of 70 or below is one of the indicators used to diagnose Intellectual Disability.

ISP: Integrated Service Plan. The plan from MCO’s that describes all the services the individual needs.

K.A.R.: Kansas Administrative Regulations.

KAMIS: Kansas Assessment Management Information Systems. Replaces the BASIS reporting system.

KANCARE: The KanCare program is the State of Kansas’ plan to transition Kansas Medicaid into an integrated care model. Kansas has contracted with three new health plans, or managed care organizations (MCOs), to begin coordinating health care for nearly all Medicaid beneficiaries. The KanCare program is scheduled to begin in January 2013. The KanCare health plans are Amerigroup of Kansas, Inc. (Amerigroup), Sunflower State Health Plan (Sunflower), and United Healthcare of the Midwest (United).

KANCARE OMBUDSMAN: The Ombudsman helps Kansas consumers in the HCBS waiver programs or people who get other long-­‐ term care services through KanCare. The Ombudsman helps KanCare consumers with problems in getting services. The Ombudsman will give information about the KanCare grievance and appeal process.

KCDD: Kansas Council on Developmental Disabilities. (DD Council)

KDADS: Kansas Department for Aging and Disability Services. Services provided by the State. Oversees management of all state waivers. Effective 7/01/12, the Kansas Department of Aging (KDOA), Social & Rehabilitation Services (SRS), and the Kansas Department of Health & Environment (KDHE) merged to form KDADS.

KDHE: Kansas Department of Health and Environment. See KDADS definition.

KLO II: Kansas Lifestyle Outcome. A quality assurance tool used by KDADS to evaluate IDD services.

KRS: Kansas Rehabilitation Services.

K.S.A.: Kansas Statues Annotated. A Kansas law.

MCO: Managed Care Organization. The three organizations that are contracted to deliver Medicaid. They are; Amerigroup, Sunflower, and United.

MH: Mental Health. Service not provided by I/DD Waiver.

MR: Mental Retardation. A term no longer used. See I/DD.

MR/DD: Mental Retardation/Developmental Disability. Term no longer used. See I/DD.

NCI: National Core Indicators.

NOA: Notice of Action.

NPR: Notice of Proposed Rule Making.

OMBUDSMAN: An ombudsman is usually appointed by the government, but with a significant degree of independence, who is charged with representing the interests of the public by investigating and addressing complaints of maladministration or violation of rights.

PCP: Primary Care Provider/ Physician – the individual’s primary medical provider

PCP: Person-Centered Plan a requirement for anyone receiving IDD services.

PCSP: Person-Centered Support Plan. Plan prepared by a case manager which outlines specific goals of an individual with I/DD and action steps to accomplish those goals. Updated annually.

PAS: Personal Assistant Services (self-­‐directed). The funding that is used when a person self-­‐directs their service. Always used with FMS.

POC: Plan of Care. Term no longer used. See ISP.

PRTF: Psychiatric Residential Treatment Facility for children. The child must meet a threshold to be placed in a PRTF and it is not for long-term care.

Psych Eval: Psychological Evaluation. Includes testing of the level of cognitive functioning. Determines the potential to understand and apply new information.

QA: Quality Assurance.  A process for monitoring the quality of services being provided to I/DD individuals.

QAC: Quality Assurance Committee.  Committee designed to ensure quality of service in service area.

QE: Quality Enhancement -­‐ a way to ensure service is performed in a manner so as an I/DD individual’s rights and choices are observed and protected.

QMS: Quality Management Specialist. KDADS employee who oversees the quality of services.

RFI: Request For Information.

RFP: Request For Proposal.

ROI: Request For Information.

SACK: Self Advocate Coalition of Kansas.

SC: Service Coordinator.

SGF: State General Funds. One funding stream for I/DD services and supports. SGF funding is currently not available.

SHC: Supportive Home Care. Agency-­‐directed service. An in-­‐home support which provides direct assistance with daily living needs

for individuals living in the family home.

SIL: Supported Independent Living.

SMI: Serious Mental Illness. Mental Illnesses that qualify for Health Homes.

SPMI: Serious and Persistent Mental Illness. For some intensive Mental Health Services, the adult must have a severe and persistent mental illness.

SPA: State Plan Amendment.

SRS: Social and Rehabilitation Services. Its services were split to form the new Department of Children and Families (DCF) and added to the Department of Aging which became the new Department of Aging and Disabilities Services (KDADS). See KDADS information for IDD service information.

STC: Special Terms and Conditions.

TCM: Targeted Case Management. Assists to identify, select, obtain, coordinate, and use paid services & natural supports to enhance independence, integration, & productivity. TCM is required when self-­‐directing an I/DD paid service. TCM services can be refused if receiving agency-directed services.

VR: Vocational Rehabilitation a/k/a “Voc. Rehab” which is a division of DCF. Helps people with disabilities become gainfully employed and self-­‐sufficient.

Waiver: Amendment to the state Medicaid plan that allows states to provide services to specific populations. The purpose of most waivers is to keep consumers out of long-­‐term institutions.

HCBS Waiver-­‐ Autism: This allows child ages 0-­‐5 diagnosed with autism to receive services to remain living at home and in the community.

HCBS Waiver-­‐ Developmental Disability: Persons aged 5+ who meet the ICF/MR level of care.

HCBS Waiver-­‐ Frail and Elderly: For person 65+ who meet Medicaid Long Term Care threshold.

HCBS Waiver Physical Disability: This waiver is for persons 16+ with a physical disability and/ or those 65+ who need personal assistance to accomplish normal activities.

HCBS Waiver-­‐ Technology Assisted: This waiver allows medically fragile children 18 and younger who are dependent on hospital level of care to remain living and home and in the community.

HCBS Waiver-­‐ Traumatic Brain Injury: TBI Waiver. This waiver allows persons, aged 16-­‐55 who meet the head injury rehabilitation hospital level of care to remain at home or in the community.

HCBS Waiver-­‐ Serious Emotional Disturbance: For those aged 0-­‐18 years that meet the criteria.

WORK Program: Work Opportunities Reward Kansans is a state plan benefit package designed for Working Healthy Participants who need personal services in order to live and work in the community. WORK provides a monthly allocation to purchase personal services, assistive technology, and Independent Living Counseling services.

Working Healthy: A Medicaid Program. Offers people with disabilities that are working or interested in working the opportunity to get or keep Medicaid coverage while on the job. Must meet certain criteria to qualify.

Charting the
LifeCourse
Framework

Develop a vision for a good life.
Think about what you need to know and do.
Identify how to find or develop supports.
Discover what it takes to live the life you want to live.

Get
Empowered

View Resources

Five Year State Plan
2022-2026

· Creating Leaders & Empowering Advocacy
· Leading Systems Change

 

Read State Plan

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